This will be a short update today. I have a blood transfusion in a couple of hours. I always have a lot more energy after transfusions. Yesterday was the first day after chemo that I really felt my energy come back so it was a bit of a surprise to wake up this morning feeling weak. I did have an appointment with Dr Golden, the oncologist who is caring for me until Dr Lee returns from vacation next Tuesday. Since blood tests are always a part of every appointment we were able to see my hematocryt was 30, which is low for me.

We also looked at the CT scans taken yesterday and it is the radiologist’s opinion that the tumors have not changed since the last CT scans at the beginning of April. We also looked at the December CT scans and it looks pretty obvious that the tumors have not shrunk since we changed chemos a couple of months ago. It is difficult to determine the margins of the tumors so I asked to have the radiologist compare the current CT with the December CT for size. It looks like the liver tumor is still 6-8cm which is a long way from the goal of 3cm we are looking for to consider surgery.

Am I discouraged, Yes! Frustrated, Yes! Angry, Yes! Driving home with Heather I felt like stopping at a batting cage to cream a few fastballs- if I didn’t have my liver tube to worry about I think I would have. Chemo is a lot of work and it takes a lot of energy to sustain. While it is good news that the tumors have not increased in size, it is very frustrating to know that they have not been reduced by the new chemo. I called Dr. Jeff Trent at tGEN regarding the DNA analysis of my tumors and hope to hear back from him on his thoughts on a new chemo cocktail for next week.

I know in a few hours I will be up again and full of energy, but right now I just need to be able to rest in my discouragement. Knowing that God is Good, All the Time, even when it doesn’t feel that way. That I know from the core of my Spirit.

God is Good, All the Time, God is Good!

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Comments

3 Comments so far

  1. kls80 on May 2, 2007 10:49 am

    I love you Don! I don’t know what else to say but just keep your faith in the Lord and know that He IS in control. Thank you for your honesty. I will continue to pray for clarity and discernment with what to do next. You are so loved and I and the rest your friends and family are here for you!

    Love,
    Kirsy

  2. Javier on May 2, 2007 6:12 pm

    Dear Don:
    Please keep trying!!!! We your friends are praying for your recovering with the will of God!
    Receive all our love for you and Heather.
    A big hug
    Javier

  3. Holly on May 3, 2007 7:23 am

    Dear Don, You don’t know me. I am a friend of Millie through BSF and I met Heather there too. I just want you to know what an encouragement you have been to our family. We have been following your battle and gathering strength from you as our son Ian, fights his battles in Ramadi, Iraq. I pass on your messages to Ian and it is amazing how many similarities there are. He has just received word he will have to stay in Iraq until December when he thought he would get to come home in August. Discouraged, yes, frustrated, yes, angry, yes…but he continues to fight the good fight for which God called him. I can’t wait to send this one to him. And here’s a scripture from BSF this week that I sent to Ian and you also might find encouraging…
    Endure hardship with us like a good soldier of Christ Jesus. 2Tim2:3.
    We pray for you and your family with great hope and admiration for your faith. Love, Holly O’Leary

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