Over the last few days my pain has continued as well as prolapse of my ileostomy. I also continue to to feel goofy and bloated.

Yesterday Doug Lee stopped in with more difficult news- virtually all these things are coming from my liver which he has assessed is dying- my bilirubin also continues to remain high, and my INR (thinning blood) remain high even without any medication. Of course he hopes he is wrong but it will take a real and sudden miracle to restore my liver.

So the time between “Dancing on the Edge of Heaven” and “Dancing in Heaven” may be drawing to a close.

God is Good all the time; God is Good.


[Ed. note from Skip – Over these many months, Don has asked me to edit drafts of his blogs and to publish them after editing. This is the hardest one I’ve had to edit and publish. I know he is at peace with Dancing in Heaven and not just on the “Edge of Heaven. But he does grieve over leaving this life, especially leaving Heather and the boys.

If you’re like me, you’re struggling with how to pray in this situation. I want to share something I came across reading in Isaiah 62: 6-7 a couple of days ago, which I have been pondering.

You who call on the LORD, give yourselves no rest, and give him no rest till he establishes Jerusalem and makes her the praise of the earth.

The context of the passage is the desolation of Jerusalem, and the plea that God would restore her fortunes and her people. What I had never seen before was the phrase and give him no rest. How about that? Let’s give Him no rest. Let’s batter down the doors with our prayers. God invites us to do that.

Skip, for Don & Heather

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13 Comments so far

  1. Connie on November 21, 2007 2:39 pm

    I am praying, praying, praying for you as Skip suggests.

    I pray also for Heather and the boys.

    I love you,

  2. gregu on November 21, 2007 3:51 pm

    Don – we love you. And we love knowing how much God loves you and all of us. We are praying hard for you, Heather and family. We are in Dallas at my folks, who, as you know, also follow everything in the blog and are praying intensely.

    Greg, Kristen & the kids.

  3. Mike Murray on November 21, 2007 6:03 pm

    Don – what an incredible ride you have Deneil and me on with your blog. It has been an emotional wake-up for me and I have been feeling much closer to god as a result. We are praying for you, Heather and the kids.

    Thanks so much for sharing your life with us.


  4. scott hightower on November 21, 2007 8:15 pm

    Dear Don

    We continually hold you before the Throne of Grace and know that you are held in God’s wonderful, powerful, loving hands. We pray for His peace that is beyond our understanding to surround you, Heather and the boys.

    We love you,

    Scott and Betty Hightower

  5. JimBecky on November 21, 2007 10:38 pm

    Dear Don,
    We are sending our love, prayers and blessings to you from Dubai! As we’ve travelled through East Africa this past month we’ve continued to follow your postings and kept you in our thoughts and our prayers. We’ve been so encouraged by how you continue to choose Jesus in the midst of all! We are blessed, challenged, encouraged and strengthen by you witness and so appreciate your friendship. We send huge Thanksgiving hugs from 1/2 way around the globe!! Blessings always, Jim and Becky Brown

  6. rakemorales on November 21, 2007 11:19 pm

    Dear Don,

    So many times I have thought about writing you and I have not found the words to provide you with comfort. I have come to realize that the way you write always ends up comforting me. Thank you for taking the time to write and to share, even in the most difficult times. Thank you for your gift of this blog and your life. You are continually in my thoughts and prayers as are Heather and the boys.

    May God continue to sustain you and demonstrate his presence in every moment.

    Con mucho amor,


  7. Jeff Brown on November 22, 2007 8:05 am

    Dear Don,
    The courage of your faith in Jesus profoundly encourages me for the times I have left in this life. Thank you.

    Dancing in heaven sounds so much better than dancing on the edge. After reading a few of Randy Alcorn’s books on heaven, I am convinced that what God has prepared for us is un imaginably better than what we know and yet we will not loose what we enjoy so much here, such as the our family and friends, the crisp sweet air on a late summer night in Whidbey Island or the joy of learning about yet another piece of God’s creation. I have never been where you are now but I thank you for showing the way to the edge. Your are a prince of the king and I look forward to serving Him with you in eternity some day. I would love to explore with you some day ahead.

    I pray for your continued strength of heart, your assurance of faith and your hope of eternity now.

    Our love to you brother,
    Jeff and Jan Brown

  8. Polly Urquhart on November 22, 2007 8:07 am

    Don, you continue to be my first waking thought. I watched e-mail all day yesterday…off and on but missed last night. I am hanging onto His robe for you as Greg said. We love you and Heather and your sons.

  9. Steven Hoke on November 22, 2007 8:22 am


    In many ways it seems like yesterday, but it has been 18 years since I found myself at the same age and place as your boys. At 15 years old I rushed home from a summer working in the Rocky Mountains to be with my father as he journied from the place of “Dancing on the Edge of Heaven” to a place of permanent healing. He is now, as you so aptly wrote, “Dancing in Heaven”.

    I wanted to write you this morning from the perspective of a son. You have lived life to the full and through your love you have left a lasting legacy for your boys. You are an inspiration and encouragement to many. This is the most meaningful and important gift a father can give a son.

    To this day I often think of my fathers (my birth father was killed in an accident when I was two). Their love for me, and their demonstration of how to love and live life well, has been a lasting legacy that continues to inspire me dailey. From this legacy I find courage and stregth. My fathers each made a difference in their own lifetimes and continue to do so through the life of their son in the 21st century.

    I also write today to speak of how the Father has never left me in the years since my fathers pasing. God is now my father in every since of the word. He has cared for me in ways unimaginable. It is true that I have struggled at times with the seeming unjustness of the situation (I was young, as was my fathers were young), but in time I have come to know and embrace life in a different, more complete way as a result.

    There is no question that you will one day experience complete healing. But as the rest of us wait I will continue to pray that your family will experience the kind of healing that I have in the years since my father’s passing. I have every confidence that your family will be cared for by many and that your legacy will continue to bear fruit for many years to come.



  10. Riegedh on November 22, 2007 11:57 am

    Especially, over the past week thoughts of you have surfaced many times. I discovered this website and although I have not had time to read all of it yet(I will), I have read enough to want to send you and your family my thoughts and prayers.

    Back in our days in Davis in the late 70’s, I knew that with your high energy, creativity and empathy, you were destined for an unusual journey. This has turned out to be the case. Clearly, you have explored, grown, and embraced life, and the people in your life, to the fullest. By sharing now, you are leaving everyone a wonderful gift of inspiration which will change each person’s life in some very special way.

    I look forward to seeing you again and sharing stories in a blink of time.

  11. Lynnee on November 22, 2007 2:49 pm

    You continue to be an inspiration and beacon of light. Thank you for your lasting life gifts. Praying as always for you, Heather and the boys.


  12. inga on November 22, 2007 2:58 pm

    I am leaving to get on the plane in one hour! In my quiet time this morning I was reminded of what we are created for and what is awaiting us. I had a precious moment of glimpsing eternity and the things to come when all is made right and He will reign and all knees will bend to His truth. He is King of Kings. Praise Him for that. I love you so much and can hardly wait to be by your side and give you a hug and kiss. “no guilt in life, no power in death, this is the POWER OF CHRIST IN YOU”.


  13. dangeric on November 23, 2007 1:39 pm


    Who knew that God would cast you in this remarkable role and that you would be so perfectly suited to play it? You no doubt had an appreciation for this early on but it’s only now as your dance is reaching its climax that I see the full glory of God’s choreography.

    This has not always been the case. Over the past year, I have felt the entire range of emotions in witnessing your journey. I have felt confusion and sadness at the thought of your family losing your physical presence. I have felt anger at a disease that has given you pain. I have felt amazement at your courage. I have felt encouraged and blessed by your faithfulness. I have felt joy as you have cast light on the things we take for granted. I have felt God’s presence stronger than ever through your witness.

    As it has all come together, I now realize that God has had this incredible vision all along. I appreciate a great story and yours rivals the best whether this proves to be an act break or the end of the play. Thanks for everything ounce of energy you have given us my friend. Thanks for inviting us all along and enabling us to get our own glimpse of Heaven.

    Love, rick

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